You are concerned by Stargardt disease and are a carrier of the mutating ABCA4 gene. Come and join us !
Stargardt Foundation supports research on Stargardt disease.
It aims to create an active interaction between patients and the world of medical research, in order to stop the disease and restore vision.
The aim of the Stargardt Foundation is to federate patients with the desease or carriers of the ABCA4 gene.
In joining us as carriers of the mutating ABCA4 gene, you :
- take part in setting up a community of people with Stargardt desease, carriers of the mutating ABCA4 gene, involved in finding a treatment.
- will follow via the Stargardt Foundation, the development of clinical trials set up by teams of world-reknown researchers (ophtalmology, biology in gene and cellular therapy …) and also of hospital services (private and public).
- receive every 6 months the latest information on Stargardt desease research.
To help research, accompany the Stargardt Foundation.
Join the community « Research for Stargardt desease » by filling in the following form :
We need your contact details to add you to our community database.
The law on Information Systems and Personal Freedoms give you access to modify or erase any personal data. Just get in contact with the Stargardt Foundation.
Please fill in the following form.
The fields with an asterisk (*) must necessarily be completed.
You may contact us at the following address
9 Rue Pastourelle
75003 Paris, France
Tel : +33 (0)9 53 73 68 15